In the Dementia Carer's World we want to aid you in thinking about what a dementia diagnosis will mean for the future. A diagnosis does eventually change life. It often calls for a carer to adapt and change and for new ways of communication and connection with those we know and care for. It does have an impact on ourselves, friends and families. We hope these themes and sections do give an insight into dementia care and show that the more understanding we have the more we are able to cope with changes as they happen.
A little tip: anything that is underlined or in a circle will lead you to another page or information so be free and click away!
As you will see, we have a lot of information to add and so we are constantly updating the site. If there isn't a link to further information it will be coming soon. Please use our Contact form to let us know if you'd like us to add anything :)
bEING AND bECOMING A CARER
-a ROLLER COASTER LIFE-
Understanding the changes carers and family need to make
HOLDING ON TO THE
GOOD TIMES
Laughter and special memories
Keeping a sense of humour
Learning to live in the moment
Understanding ‘time’ in our relationships
BEING aND REMAINING IN CONNECTION
WITH THE PHYSICAL WORLD AND SELVES
Need for more non-verbal communication
IN ALL STAGES OF DEMENTIA
Understanding a different way of reasoning
Early Stages
Moderate Stages
Advanced Stages
Repetition
Stubbornness
Aggression
Dignity
Keeping Independent
Respecting Autonomy
Lapsing into languages used in younger years
WITH FAMILY, FRIENDS AND COMMUNITY
Creating a dementia-friendly environment
Dealing with negative attitudes about dementia
Stigma and ignorance
SOCIAL NETWORKS AND SUPPORTS
FAMILY, FRIENDS AND COMMUNITY
Talking with family, friends and neighbours about dementia
Talking with children about dementia
Developing understanding relationships with the community around you
ACCESSING SUPPORT OUTSIDE THE HOME
MyAgedCare
ACAT
Home Care
Support Groups
Doctors
Counselling
Help from dementia-specific organisations
practicalities
PLANNING AND THINKING AHEAD
In early stages
In mid stages
In advanced stages
AS DEMENTIA ADVANCES
Bathing and dressing
Furniture and equipment
Medications
Deciding about residential care
Other helpful hints
WELLBEING
Eating well
Exercise
Staying healthy
Looking after 'me'
Time for one's self
BOOKS, FILMS AND
STORIES
Books for young adults
ORGANISATIONS SUPPORTING CARERS
Dementia specific organisations
Government organisations
Homecare providers
Residential care providers
Carer respite
Carer forums
DEMENTIA ACROSS
DIFFERENT CULTURES
Please note:
These pages are not yet developed
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